One-third of children with rare diseases have to wait over five years for diagnosis – Rare Disease Ireland

More than one-in-three children with a rare disease waited over five years for their diagnosis, new findings have revealed. It has also emerged that some 4,023 children are now on waiting lists for clinical genetics. These findings, published today (MON) by Rare Disease Ireland, point to a “fragmented” and “torturous” route to treatment for thousands [...]

By |2022-01-31T10:17:30+00:00January 31st, 2022|Uncategorised|0 Comments

Helping the ‘forgotten families’ of ill children with non-medical expenses – Cliona’s Foundation

Brendan and Terry Ring didn’t plan to establish a national charity in memory of their daughter but they did want to support other families who were treading the same path of serious childhood illness. Now their Limerick-based Cliona’s Foundation has been going for as long as the lifespan of the girl it’s named after – 15 years. [...]

By |2022-01-31T10:15:56+00:00January 31st, 2022|Uncategorised|0 Comments
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