Network Members

ACT for Meningitis

ACT for Meningitis is a charity which aims to raise awareness and educate society about the signs and symptoms of meningitis while offering free support services in Ireland to those affected by the disease.Our support service is tailored to the needs of the individual /family to find the most appropriate and beneficial service for them.

Asthma Society of Ireland

The Asthma Society of Ireland’s mission is to stop asthma deaths in Ireland. We are the voice of the 380,000 people with asthma in Ireland, and our work radically transforms their quality of life. We fight asthma with every breath. Our vision is that everyone with asthma in Ireland lives a full life, symptom-free.


Founded in 1995, Bodywhys is the national voluntary organisation supporting people affected by eating disorders. It provides a range of non-judgemental support services. Their mission is to ensure support, awareness and understanding of eating disorders amongst the wider community as well as advocating for the rights and healthcare needs of people affected by eating disorders.

Brain Tumour Ireland

Brain Tumour Ireland was founded in 2012 by a small group of people caring for a family member who was sadly lost to a Brain Tumour.

As a national organisation our aim is to continue to fight the battle against the disease in her honour. Through Brain Tumour Ireland (The Ronnie Fehily Foundation) we hope to create a place where people can come for information, guidance and comfort. A place to learn what to expect and a community to provide support.


Our vision is to provide improved and professional medical transportation services for long-term sick and seriously disabled children, who require professional ambulance transportation. We will transport children in a fun environment from the far reaches of Ireland, both urban and rural, to their treatment centres.

At BUMBLEance, our aim is to make every trip a positive experience.

Childhood Cancer Foundation

Childhood Cancer Foundation is a national, parent led, voluntary organisation.

Their main objectives are to:

– Raise awareness among the Irish public about issues surrounding childhood cancer

– Help fund supports for parents and children around the country who are affected by this disease

– Advocate for improved services for children and families affected by childhood cancer

Children in Hospital Ireland (CIH)

Children in Hospital Ireland advocates for the rights and welfare of children in hospital, the specific challenges faced by children in hospital and their parents or careers, the right of the child in hospital to play, and the need for a more child centred approach in the provision of healthcare services for children. Children in Hospital Ireland is widely recognised to have played an important role in influencing many positive changes that have occurred in hospital care for children in Ireland over recent decades.

Cliona’s Foundation

Cliona’s Foundation is a Limerick-based charity that provides financial assistance directly to parents of children with life-limiting or chronic complex care needs across Ireland to help with the non-medical expenses related to caring for their child.

Cystic Fibrosis Ireland

CF Ireland (CFI) is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. CF Ireland also co-operates with medical professionals to give maximum assistance to both parents and children/adults with Cystic Fibrosis.

Down Syndrome Ireland

Down Syndrome Ireland offers information, practical help and support. They are a community of people who share the same journey. Down Syndrome Ireland has 25 branches nationwide. These branches are run almost exclusively by volunteer parents and provide children and adults with Down syndrome and their families with a wide range of vital services and social opportunities.

Epilepsy Ireland

Epilepsy Ireland was founded to help to achieve a society where no person’s life is limited by epilepsy. They provide a range of support services from one to one support and family supports. They also invest in Irish Research and have invested over €1million since 2009.

Heart Children Ireland

Heart Children Ireland was founded in 1990 by a group of parents who met in Our Lady’s Hospital in Crumlin. Heart Children Ireland’s mission is to enable all those born with Congenital Heart Disease live with the best possible lives. Their vision is to create a society where all those with CHD are empowered so that they can live more confident and independent lives.

Irish Neonatal Health Alliance

The INHA was set up to provide family support and empowerment for families affected by a premature birth and families with infants in the NICU. They provide pre-conceptual, antenatal and post-natal information and education, a mentoring programme for affected families and empower families to become primary caregivers to their infants. They also provide a platform to access developmental follow up care.

Neurofibromatosis Association of Ireland

The Neurofibromatosis Association of Ireland was founded in 1985. NF Ireland provide a comprehensive range of services including a 24-hour Helpline. At NF Ireland our aim is to be a voice for Neurofibromatosis patients and their families.  Our primary aim is to inform sufferers and their families of the disorder, supporting them and letting them know they are not alone with the condition.  We provide support and information on Neurofibromatosis to patients, families, and healthcare providers.

Rare Diseases Ireland

Rare Diseases Ireland is the national alliance for rare diseases patient organisations in Ireland. Their vision is equity for people living with rare condition: equitable access to diagnosis, treatment, health, social care and opportunity.

Spina Bifida Hydrocephalus Ireland (SBHI)

Spina Bifida Hydrocephalus Ireland continues its tradition as a voluntary organisation, with an elected Board of Directors made up of voluntary members and parents in addition to Branches in some areas which are run by groups of local volunteers. The association has thousands of members nationwide consisting of those with spina bifida and/or hydrocephalus, their parents, siblings, family, friends and carers.

Our members have a wealth of knowledge and experience which is invaluable to the association and its future development.