You are not alone - support groups for parents and children

It can be difficult for children and their families to deal with an illness or condition, even if the problem is a short-term one. However there are many organisations and groups which have been set up, usually by parents, to provided support, help and advice for families. There is truth in the saying “a problem shared is a problem halved”

Below is a list of organisations where parents can get information on all aspects of their child’s condition or illness. Clicking on the links will bring you directly to the various websites and from there you can contact the organisation directly.

If you cannot find a group to help with your particular situation, please contact us and we will try to help.

(If you are a member of a support group we have not listed, please contact us and we will provide a link)

ACT for Meningitis

http://www.actformeningitis.ie


Anne Sullivan Foundation for Deaf and Blind Children

www.annesuillivan.ie

01- 830 0562


Arthritis Ireland

www.arthritisireland.ie

01-661 8188


AsIAm

www.asiam.ie


Aspire

http://www.aspireireland.ie/cmsWP/

01-878 0027


Asthma Society of Ireland

www.asthmasociety.ie

1850-445 464


Autism, Irish Society for

www.autism.ie

01-874 4684


Blind, National Council for the

www.ncbi.ie

1850-33 43 53


Bodywhys

www.bodywhys.ie

01-283 4963


Bone Marrow Transplant Awareness

www.giveblood.ie


Epilepsy Ireland

www.epilepsy.ie

01-455 7500


Brí (Independent brain injury support and advocacy)

support@briireland.ie

01 235 5501


CanTeen Ireland

www.canteen.ie

01-872 2012


CARI 

www.cari.ie

01 8308529


Central Remedial Clinic

www.crc.ie

01-8542200


Childhood Cancer Foundation

http://www.childhoodcancer.ie/


Children’s Liver Disease Ireland

www.cldi.ie 


Children’s Rights Alliance Helpline & Legal Advice Clinic

www.childrensrights.ie

01-405 4823


Cleft Lip & Palate Association of Ireland

www.cleft.ie

087 131 9803


Coeliac Society of Ireland

www.coeliac.ie

01-872 1471


Colitis & Crohn’s Disease, Irish Society for

www.iscc.ie

01-872 1416


Cuidiu Irish Childbirth Trust

www.cuidiu-ict.ie

01-872 4501


Deaf Society, Irish

www.irishdeafsociety.ie

01-860 1878


Debra Ireland

www.debraireland.org

01-412 6924


Dental Health Foundation

www.dentalhealth.ie

01-478 0466


Diabetes Ireland

www.diabetes.ie   

01-836 3022


Disability Federation of Ireland

www.disability-federation.ie

01-295 9344


Down Syndrome Ireland

www.downsyndrome.ie

01-426 6500


Dystonia Ireland

www.dystonia.ie

01-492 2514


Enable Ireland

www.enableireland.ie

01-872 7155


Foster Care Association, Irish

www.ifca.ie

01-296 1088


Friedreich’s Ataxia Society of Ireland

https://afi.ie/

01-289 4788


Cystic Fibrosis Ireland

www.cfireland.ie

01-496 2433


Chime

https://www.chime.ie/

01-817 5700


Cliona’s Foundation

www.clionas.ie

Haemophilia Society, Irish

www.haemophilia.ie

01-657 9900


Headway

www.headway.ie

01-810 2066


Heart Children Ireland

www.heartchildren.ie

1850-217 017


ICAN

https://icanireland.ie/


Inclusion Ireland

www.inclusionireland.ie

01-855 9891


Irish Neonatal Health Alliance

https://www.inha.ie/


The Irish Skin Foundation

https://irishskin.ie/


ISPCC

www.ispcc.ie

01-676 7960


Jack and Jill Childrens Foundation

www.jackandjill.ie

045-894 538


Kidney Association, Irish

www.ika.ie

01-620 5306

Kidney Association, Irish

www.ika.ie

01-620 5306


Lupus Group Ireland

www.lupus.ie

01-872 4518


Myaware (Myasthenia Gravis Association)

www.myaware.org


Migraine Association of Ireland

www.migraine.ie

01-894 1280


Muscular Dystrophy Ireland, MDI

www.mdi.ie

1800 245 300


NF Association of Ireland

www.nfaireland.ie

01-872 6338


National Advocacy Service for People with Disabilities (NAS) 

advocacy.ie/

0761 07 3000


Patient Advocacy Service

www.patientadvocacyservice.ie

0818293003


Parentline 

www.parentline.ie

1890-927 277


Pavee Point Traveller and Roma Centre

www.paveepoint.ie

01-878 0255


Rehab Group

https://www.rehab.ie/


Spina Bifida Hydrocephalus Ireland

www.sbhi.ie

T: 01 457 2329


Barnardos Children’s Bereavement Service

https://www.barnardos.ie/our-services/work-with-families/bereavement-services

01-473 2110


Sugradh

www.playireland.ie

01-286 6991


Trisomy, Support Organisation For (SOFT)

www.softireland.com

1800-213 218


Wheelchair Association, Irish

www.iwa.ie

01-818 6400