Support Groups
You are not alone – support groups for parents and children
It can be difficult for children and their families to deal with an illness or condition, even if the problem is a short-term one. However there are many organisations and groups which have been set up, usually by parents, to provided support, help and advice for families. There is truth in the saying “a problem shared is a problem halved”
Below is a list of organisations where parents can get information on all aspects of their child’s condition or illness. Clicking on the links will bring you directly to the various websites and from there you can contact the organisation directly.
If you cannot find a group to help with your particular situation, please contact us and we will try to help.
(If you are a member of a support group we have not listed, please contact us and we will provide a link)
ACT for Meningitis
http://www.actformeningitis.ie
Anne Sullivan Foundation
Arthritis Ireland
AsIAm
Aspire
http://www.aspireireland.ie/cmsWP/
Asthma Society of Ireland
Irish Society for Autism
National Council for the Blind
Bodywhys
Bone Marrow Transplant Awareness
Epilepsy Ireland
Brí (Brain injury support and advocacy)
CanTeen Ireland
CARI
Central Remedial Clinic
Childhood Cancer Foundation
http://www.childhoodcancer.ie/
Children’s Liver Disease Ireland
Children’s Rights Alliance
Cleft Lip & Palate Association of Ireland
Coeliac Society of Ireland
Colitis & Crohn’s Disease, Irish Society for
Cuidiú Irish Childbirth Trust
Deaf Society, Irish
Debra Ireland
Dental Health Foundation
Diabetes Ireland
Disability Federation of Ireland
Down Syndrome Ireland
Dystonia Ireland
Enable Ireland
Foster Care Association, Irish
Friedreich’s Ataxia Society of Ireland
Cystic Fibrosis Ireland
Chime
Cliona’s Foundation
Haemophilia Society, Irish
Headway
Heart Children Ireland
ICAN
Inclusion Ireland
Irish Neonatal Health Alliance
The Irish Skin Foundation
ISPCC
Jack and Jill Children’s Foundation
Irish Kidney Association
Lupus Group Ireland
Myaware (Myasthenia Gravis Association)
Migraine Association of Ireland
Muscular Dystrophy Ireland, MDI
NF Association of Ireland
National Advocacy Service for People with Disabilities (NAS)
Patient Advocacy Service
Parentline
Pavee Point Traveller and Roma Centre
Rehab Group
Spina Bifida Hydrocephalus Ireland
Barnardos Children’s Bereavement Service
https://www.barnardos.ie/our-services/work-with-families/bereavement-services
Sugradh
Support Organisation for Trisomy (SOFT)
Wheelchair Association, Irish