Support Groups

You are not alone – support groups for parents and children

It can be difficult for children and their families to deal with an illness or condition, even if the problem is a short-term one. However there are many organisations and groups which have been set up, usually by parents, to provided support, help and advice for families. There is truth in the saying “a problem shared is a problem halved”

Below is a list of organisations where parents can get information on all aspects of their child’s condition or illness. Clicking on the links will bring you directly to the various websites and from there you can contact the organisation directly.

If you cannot find a group to help with your particular situation, please contact us and we will try to help.

(If you are a member of a support group we have not listed, please contact us and we will provide a link)

ACT for Meningitis

http://www.actformeningitis.ie


Anne Sullivan Foundation

www.annesuillivan.ie


Arthritis Ireland

www.arthritisireland.ie


AsIAm

www.asiam.ie


Aspire

http://www.aspireireland.ie/cmsWP/


Asthma Society of Ireland

www.asthmasociety.ie


Irish Society for Autism

www.autism.ie


National Council for the Blind

www.ncbi.ie


Bodywhys

www.bodywhys.ie


Bone Marrow Transplant Awareness

www.giveblood.ie


Epilepsy Ireland

www.epilepsy.ie


Brí (Brain injury support and advocacy)

[email protected]


CanTeen Ireland

www.canteen.ie


CARI

www.cari.ie


Central Remedial Clinic

www.crc.ie


Childhood Cancer Foundation

http://www.childhoodcancer.ie/


Children’s Liver Disease Ireland

www.cldi.ie


Children’s Rights Alliance

www.childrensrights.ie


Cleft Lip & Palate Association of Ireland

www.cleft.ie


Coeliac Society of Ireland

www.coeliac.ie


Colitis & Crohn’s Disease, Irish Society for

www.iscc.ie


Cuidiú Irish Childbirth Trust

www.cuidiu-ict.ie

Deaf Society, Irish

www.irishdeafsociety.ie


Debra Ireland

www.debraireland.org


Dental Health Foundation

www.dentalhealth.ie


Diabetes Ireland

www.diabetes.ie


Disability Federation of Ireland

www.disability-federation.ie


Down Syndrome Ireland

www.downsyndrome.ie


Dystonia Ireland

www.dystonia.ie


Enable Ireland

www.enableireland.ie


Foster Care Association, Irish

www.ifca.ie


Friedreich’s Ataxia Society of Ireland

www.afi.ie/


Cystic Fibrosis Ireland

www.cfireland.ie


Chime

https://www.chime.ie/


Cliona’s Foundation

www.clionas.ie

Haemophilia Society, Irish

www.haemophilia.ie


Headway

www.headway.ie


Heart Children Ireland

www.heartchildren.ie


ICAN

www.icanireland.ie/


Inclusion Ireland

www.inclusionireland.ie


Irish Neonatal Health Alliance

https://www.inha.ie/


The Irish Skin Foundation

https://irishskin.ie/


ISPCC

www.ispcc.ie


Jack and Jill Children’s Foundation

www.jackandjill.ie

Irish Kidney Association

www.ika.ie


Lupus Group Ireland

www.lupus.ie


Myaware (Myasthenia Gravis Association)

www.myaware.org


Migraine Association of Ireland

www.migraine.ie


Muscular Dystrophy Ireland, MDI

www.mdi.ie


NF Association of Ireland

www.nfaireland.ie


National Advocacy Service for People with Disabilities (NAS)

advocacy.ie/


Patient Advocacy Service

www.patientadvocacyservice.ie


Parentline

www.parentline.ie


Pavee Point Traveller and Roma Centre

www.paveepoint.ie


Rehab Group

https://www.rehab.ie/


Spina Bifida Hydrocephalus Ireland

www.sbhi.ie


Barnardos Children’s Bereavement Service

https://www.barnardos.ie/our-services/work-with-families/bereavement-services


Sugradh

www.playireland.ie


Support Organisation for Trisomy (SOFT)

www.softireland.com


Wheelchair Association, Irish

www.iwa.ie