Support Groups

You are not alone – support groups for parents and children

It can be difficult for children and their families to deal with an illness or condition, even if the problem is a short-term one. However there are many organisations and groups which have been set up, usually by parents, to provided support, help and advice for families. There is truth in the saying “a problem shared is a problem halved”

Below is a list of organisations where parents can get information on all aspects of their child’s condition or illness. Clicking on the links will bring you directly to the various websites and from there you can contact the organisation directly.

If you cannot find a group to help with your particular situation, please contact us and we will try to help.

(If you are a member of a support group we have not listed, please contact us and we will provide a link)

ACT for Meningitis

Anne Sullivan Foundation

Arthritis Ireland



Asthma Society of Ireland

Irish Society for Autism

National Council for the Blind


Bone Marrow Transplant Awareness

Epilepsy Ireland

Brí (Brain injury support and advocacy)

[email protected]

CanTeen Ireland


Central Remedial Clinic

Childhood Cancer Foundation

Children’s Liver Disease Ireland

Children’s Rights Alliance

Cleft Lip & Palate Association of Ireland

Coeliac Society of Ireland

Colitis & Crohn’s Disease, Irish Society for

Cuidiú Irish Childbirth Trust

Deaf Society, Irish

Debra Ireland

Dental Health Foundation

Diabetes Ireland

Disability Federation of Ireland

Down Syndrome Ireland

Dystonia Ireland

Enable Ireland

Foster Care Association, Irish

Friedreich’s Ataxia Society of Ireland

Cystic Fibrosis Ireland


Cliona’s Foundation

Haemophilia Society, Irish


Heart Children Ireland


Inclusion Ireland

Irish Neonatal Health Alliance

The Irish Skin Foundation


Jack and Jill Children’s Foundation

Irish Kidney Association

Lupus Group Ireland

Myaware (Myasthenia Gravis Association)

Migraine Association of Ireland

Muscular Dystrophy Ireland, MDI

NF Association of Ireland

National Advocacy Service for People with Disabilities (NAS)

Patient Advocacy Service


Pavee Point Traveller and Roma Centre

Rehab Group

Spina Bifida Hydrocephalus Ireland

Barnardos Children’s Bereavement Service


Support Organisation for Trisomy (SOFT)

Wheelchair Association, Irish